I've been avoiding writing anything the last couple of days because I don't want to jinx anything! This week, we're increasing the Septra (Bactrim), but leaving the Ceftin as is.... and so far, the herxing has been much more tolerable. It's funny how I find myself waiting for the other shoe to drop! It just goes to show just how unpredictable this whole process can be, as a week ago yesterday and today, I was pretty much couch-bound, wondering how the hell I was going to do this for atleast a year.
In other news, we had out little "Take a Bit Outta Lyme" potluck this last weekend.... it was the first time I had people over in I don't know how long, certainly since all of this began. I went into it extremely unprepared, so Deena and I were running around like chickens Saturday morning trying to get everything ready. She cleaned while Zoe and I made a bigger mess in the kitchen, making mini-vegan-keylime pies.
Not as many folks showed up as we had expected, but even so, I realized just how isolated I've been the last few months, and how good it was to reconnect. We hung out, sucked on limes, and watched Under Our Skin.... which was pretty interesting now that I'm undergoing treatment. I noticed things in the film that I hadn't noticed before, I suppose because I could relate to it in a more tangible way. One thing that stuck out for me was the idea that Lyme can be fatal if left untreated. That's not something I ever let myself think about before, but I tell you what... after last week, it made the challenges of treatment that much more bearable, knowing that I'm doing what I must to get rid of the little boogers.
I also had my LAST appointment with the mitochondrial disease specialist. I'm happy to report that my genetic testing came back, and that I don't have mito. There was one more test she wanted to do, but I'm done wasting anymore time and money and energy on that. My results did show that I have a couple of gene mutations that "could" be responsible for my aches and pains, but there was nothing definitive... and it became abundantly clear as we talked that she doesn't believe that I have Lyme. So with that, I bid her adieu!
I'm feeling very blessed.
This week:
Monday, Wednesday, Friday: Minocin, Ceftin, Bactrim
Thursday & Friday: Flagyl
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